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Home : Conditions and Diseases : Genetic Disorders : Cystic Fibrosis
Cystic Fibrosis on Health Directory
Camps Personal Pages
Fund-Raisers Pharmaceuticals and Supplies
Organizations Research
Ambry Genetics
Testing for CF mutations. Offers a comprehensive screening of CF mutations, plus Poly T Variant analysis, and direct DNA sequencing of exon.
CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
Clayton Bates Cystic Fibrosis Support Site
For family, friends, and other supporters to find out about the disease and offer support for Clayton.
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family.
Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
Cystic-L
Cystic fibrosis information and support, including a vibrant on-line community, via email, a Handbook of information and resources, photos of CFers, a CF Shop and bookstore.
CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
Michigan Pulmonary Disease Community, Inc.
Organization dedicated to enhancing lives of children and adults with Cystic Fibrosis.
MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
North American Cystic Fibrosis Conference in New Orleans
Information on program and location.
Providence Cystic Fibrosis Center
Ran by Dr. Bohdan Pichurko. Includes staff biographies, contact information, events, and latest developments in treatment.
The Breathing Room
Guidance about the art of living with cystic fibrosis.
The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
 
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