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DebRA Canada
Includes articles, news, and information about this genetic disorder.
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DebRA International
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
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DebRA UK
Features organization background, information about the disorder, fundraising and research details, and news.
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EB Info World
Information, mailing list, pictures, and help for new parents.
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EB Medical Research Foundation
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
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International EB Forum
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
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