Children of the Moon A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.
Xeroderma Pigmentosum Society Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
XP Support Group UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.